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Wir, die Kinderkrankenpflege Weser-Ems (KWE), begleiten seit über 10 Jahren schwerkranke und intensivpflichtige Kinder im Alltag.

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Intensivpflege – Pflegeberatung –

Palliativ Betreuung

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Jetzt Termin vereinbaren

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Nutzen sie die Gelegenheit für ein Telefongespräch.

Damit Sie Klarheit und Sicherheit für die Pflege Ihres Kindes gewinnen.

Kostenlos & unverbindlich.

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Unsere Begleitung für Kinder & Familien

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Die persönlichen Wünsche der Familien haben bei uns immer Priorität.

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Ängste und Sorgen nehmen wir ernst.

Wir orientieren uns an den Ressourcen, Bedürfnissen und Wünschen der Kinder und ihrer Familien.

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Unsere Stärken & Ihr Vorteil als Familie

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Warum Sie Ihr Kind vertrauensvoll in unsere Hände geben können:

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Drei erfahrene Pflegedienstleitungen (PDLs)  Sie zeichnen sich durch eine Ausbildung zur Kinderkrankenschwester sowie durch langjährige pädiatrische Expertise aus.

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Langjährige Erfahrung

Seit 2012 begleiten wir Kinder, Eltern und Angehörige mit Fachkompetenz und Herz.

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Hochqualifiziertes Team

Ausschließlich dreijährig examinierte Pflegefachkräfte, regelmäßig geschult in Kinderintensivpflege, Beatmung und Palliativ-Care.

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Ganzheitliche Pflege

Wir orientieren uns an den Ressourcen, Bedürfnissen und Wünschen der Kinder und ihrer Eltern.

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Eltern im Mittelpunkt

Wir beraten, schulen und unterstützen Sie in allen Fragen rund um die Pflege.

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Rundum flexibel & digital

Dienstplanung, Dokumentation und Kommunikation sind bei uns digital organisiert, für eine reibungslose und familienfreundliche Abstimmung.

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Verlässlichkeit & Nähe

Wir sind für Sie da: mit Respekt, offener Kommunikation und einem starken Teamgeist.

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Unsere Familien berichten

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Miraz’ Geschichte

Erzählt von seiner Mutter

"},"companyId":"632867c87305790d219dae80","pageId":"65ddedef6ac68e0014519389","campaignId":"65ddedef6ac68e0014519334","parentId":"65df32776f672f0014c8885c","categoryId":"5a957843b727462286d2d61e","sectionId":"6557bcdf32dfc44fb3c34d35","createdAt":"2024-02-28T13:17:43.923Z","updatedAt":"2025-09-24T10:27:56.002Z","__v":0}],"allowedChildSections":[],"componentType":"listItem","companyId":"632867c87305790d219dae80","pageId":"65ddedef6ac68e0014519389","campaignId":"65ddedef6ac68e0014519334","parentId":"65df30aabda2ea001472c71d","categoryId":"5a957843b727462286d2d61e","sectionId":"6557bcdf32dfc44fb3c34d35","createdAt":"2024-02-28T13:17:43.858Z","updatedAt":"2024-02-28T13:17:43.923Z","__v":0}],"allowedChildSections":[],"componentType":"list","content":{"borderRadius":"small","box":{"bottom":"small","top":"none","right":"large","left":"large"},"align":"left","visualSize":"small"},"companyId":"632867c87305790d219dae80","pageId":"65ddedef6ac68e0014519389","campaignId":"65ddedef6ac68e0014519334","parentId":"65df30aabda2ea001472c718","categoryId":"5a957843b727462286d2d61e","sectionId":"6557bcdf32dfc44fb3c34d35","createdAt":"2024-02-28T13:10:02.303Z","updatedAt":"2025-09-12T06:30:29.650Z","__v":3},{"_id":"65df33813036020014ae20c2","type":"component","isTemplate":false,"name":"text","components":[],"allowedChildSections":[],"componentType":"text","content":{"kind":[],"box":{"bottom":"small","top":"small","right":"xLarge","left":"xLarge"},"responsive":{"active":false,"hasContainer":true,"options":{"size":[],"offset":[]},"mapping":[]},"align":"left","size":"medium","text":"Das ist ein Text Block für deine Nachricht.","plainText":"\"Miraz ist unser mittleres Kind. Er hat das sehr seltene PGW-Gen-Syndrom. Weltweit gibt es laut Ärzten nur fünf Kinder mit dieser Diagnose. Das bringt viele Herausforderungen mit sich. Eine schwere Epilepsie mit unterschiedlichen Anfallsarten, dazu die Tatsache, dass er nicht sprechen und nicht selbständig laufen kann. Miraz ist dadurch rund um die Uhr pflegebedürftig. Als er fünf Jahre alt war, lag er vier Monate lang auf der Intensivstation, mit einer schweren Lungenentzündung und Dauerkrämpfen. In dieser Zeit sagten mir die Ärzte, dass es ohne einen spezialisierten Pflegedienst nicht mehr möglich wäre, ihn nach Hause zu holen. Vorher habe ich alles alleine geschafft. Vier Jahre lang habe ich Miraz alleine gepflegt, neben meinen beiden anderen Kindern. Unser ganzes Familienleben musste sich nach ihm richten. Ausflüge, Urlaube oder einfach mal Zeit für die Geschwister waren kaum möglich. Und ich selbst war 24 Stunden am Tag an ihn gebunden. Dann kam die KWE in unser Leben. Während andere Pflegedienste uns damals abgelehnt haben, hat die KWE sofort Ja gesagt. Schon beim ersten Kennenlernen hatte ich das Gefühl: Hier wird auf uns gehört, hier wird auf uns eingegangen. Heute begleitet uns die KWE täglich. Die Pflegekräfte sind wie ein Teil unserer Familie geworden. Miraz erkennt sie sofort, freut sich, umarmt sie sogar. Ich habe Vertrauen, weil wir alles gemeinsam absprechen und ich weiß: Mein Kind ist gut aufgehoben. Durch diese Unterstützung hat sich unser Leben verändert. Ich kann wieder arbeiten, ich habe Zeit für meine anderen Kinder und sogar mal Zeit für mich. Wir können wieder Ausflüge machen, Geburtstage feiern oder in den Urlaub fahren, weil die Pflegekräfte uns begleiten. Dinge, die früher undenkbar waren, sind heute möglich. Und das Wichtigste: Ich habe gelernt, dass man sich Hilfe holen darf, ja sogar muss. Denn niemand schafft es auf Dauer allein. Diese Unterstützung ist kein Zeichen von Schwäche, sondern macht das Leben für die Kinder und die ganze Familie besser. Mein Rat an alle Eltern, die sich noch nicht trauen: Holt euch ein Beratungsgespräch, macht euch euer eigenes Bild. Für uns war es die beste Entscheidung und ich bin dankbar, dass die KWE an unserer Seite ist.\"","wysiwygHtml":"

"Miraz ist unser mittleres Kind. Er hat das sehr seltene PGW-Gen-Syndrom. Weltweit gibt es laut Ärzten nur fünf Kinder mit dieser Diagnose. Das bringt viele Herausforderungen mit sich. Eine schwere Epilepsie mit unterschiedlichen Anfallsarten, dazu die Tatsache, dass er nicht sprechen und nicht selbständig laufen kann. Miraz ist dadurch rund um die Uhr pflegebedürftig.

Als er fünf Jahre alt war, lag er vier Monate lang auf der Intensivstation, mit einer schweren Lungenentzündung und Dauerkrämpfen. In dieser Zeit sagten mir die Ärzte, dass es ohne einen spezialisierten Pflegedienst nicht mehr möglich wäre, ihn nach Hause zu holen.

Vorher habe ich alles alleine geschafft. Vier Jahre lang habe ich Miraz alleine gepflegt, neben meinen beiden anderen Kindern. Unser ganzes Familienleben musste sich nach ihm richten. Ausflüge, Urlaube oder einfach mal Zeit für die Geschwister waren kaum möglich. Und ich selbst war 24 Stunden am Tag an ihn gebunden.

Dann kam die KWE in unser Leben. Während andere Pflegedienste uns damals abgelehnt haben, hat die KWE sofort Ja gesagt. Schon beim ersten Kennenlernen hatte ich das Gefühl: Hier wird auf uns gehört, hier wird auf uns eingegangen.

Heute begleitet uns die KWE täglich. Die Pflegekräfte sind wie ein Teil unserer Familie geworden. Miraz erkennt sie sofort, freut sich, umarmt sie sogar. Ich habe Vertrauen, weil wir alles gemeinsam absprechen und ich weiß: Mein Kind ist gut aufgehoben.

Durch diese Unterstützung hat sich unser Leben verändert. Ich kann wieder arbeiten, ich habe Zeit für meine anderen Kinder und sogar mal Zeit für mich. Wir können wieder Ausflüge machen, Geburtstage feiern oder in den Urlaub fahren, weil die Pflegekräfte uns begleiten. Dinge, die früher undenkbar waren, sind heute möglich.

Und das Wichtigste: Ich habe gelernt, dass man sich Hilfe holen darf, ja sogar muss. Denn niemand schafft es auf Dauer allein. Diese Unterstützung ist kein Zeichen von Schwäche, sondern macht das Leben für die Kinder und die ganze Familie besser.

Mein Rat an alle Eltern, die sich noch nicht trauen: Holt euch ein Beratungsgespräch, macht euch euer eigenes Bild. Für uns war es die beste Entscheidung und ich bin dankbar, dass die KWE an unserer Seite ist."

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